My maternal grandmother was down from a northern state visiting here recently, and I love her dearly, so it was great to see her for the first time in a year. I went several years without seeing her at all when I was very ill, not diagnosed or treated, estranged from all of my family. Hard feelings built up in many of my family members towards me, and in me towards a few of them, and we're frankly just not close anymore, most of my relatives and I. Most of this derived directly from my mental illness, though in part it was a natural evaporation of closeness that comes with living 1,000 miles away from your relatives and rarely seeing them. But my Nanny, I always tried to keep in touch with her, and in the past couple years since my grandfather (her husband, who had reason to hate me) died, I've tried more and more to renew my close ties with her, the ties we always had, most of my life.
She is a woman of few words, and of no temper tantrums. Very opposite of my mom. She is a woman who spent her entire 82 years taking care of other people, and now finds herself at a loss as to what to do with her time, having nobody to take care of anymore (though to some degree she still helps my mom). She is someone I have always enjoyed being near, not because she's overly emotionally open, but because she always seems happy to see you, and wants to do whatever she can to make you comfortable when you're in her home. And I want to do whatever I can to be there for her, across these miles. So when she was in town, it was great to go to Disneyworld with her, to take her to the movies, to play a game with her, and my mother, brother, and sister.
But, me? I'll never be a grandmother.
This fact hit me smack across my face the other day in a McDonald's. It was about 5:00 PM, and apparently many grandparents take their grand kids to Mickey-D's at that time of day, because they were there, tons of them, crawling across the tables, climbing at the walls, yelling, laughing, screaming, crying, crawling, throwing things, demanding things, eating, singing, playing, all those things little kids do. And I thought, "I will never have this in my life. There is no opportunity for this to ever be there. I will be an old woman with no children, and no grandchildren".
And most likely, I will. I am a feminist, and I am pro-choice, so I am not prone to thinking it is my destiny in life to have a child. But I would like to have the OPTION to have one, if i want to. And, I really don't have that option. That option was robbed from me by this illness I have. This schizoaffective crap. Who is going to want to have a child with me, for one thing? Who? Nobody I know. Nobody I will be likely to meet any time soon. I do not date. I have not had a boyfriend in 3 1/2 years. I am totally celibate. There is no child coming from this womb.
Who is going to be dumb enough to have a baby with all the drugs I take from so many Pharmaceutical companies that will lie to protect the dangerous side effects their drugs can cause, running rampant through my body? Who would advise me to put a fetus through that kind of atmosphere? No one.
I asked the doctor who is the director of the community mental health center I go to, when he did my recent Psychiatric Evaluation, about how much my medications would affect a child if I ever did get pregnant. He was unclear as to how much of an effect there would be. He said it would be possible to have a child. He said Klonopin is the one I'm on that most frequently causes birth defects. But what does he know for sure? I have been on many, many, many medications over the years, most of which he doesn't know about since I was only meeting with him for an hour and there was no time to discuss all those. I have probably got a damaged liver by now, and if I don't, I probably will soon enough. I have been on psychotropic drugs for 21 years. That is a hell of a long time to experiment with your body.
So I won't have the baby clothes shopping sprees, or the baby shower, or the first day of kindergarten, or the screaming infant, or the laughing toddler, or the day she learns how to walk, those things a mother has. I won't have the honor of guiding a child in the way he, or she, should go, and of reading them bedtime stories and making sure they are not afraid of the Bogey man. I won't have their college graduation, their wedding, their first apartment, their children. I won't have those grandchildren. Unlike my Nanny (grandmother), I won't have the trips to Disney world, and the visits, and the people to take care of all around me. I won't have the people to take care of me, either, in the end. I won't have anybody.
It's not all sunshine and lollipops with kids. I have even thought many times, I'm glad I don't have a child, because my life is hard enough without another person to take care of. I'm not entirely sure my nerves could handle the screaming and crying, or that my stomach could ever handle changing a dirty diaper again; it's been many years since I worked as a babysitter. I'm not sure I could ever afford a child with my income, and certainly, now, I could not. I don't know when my income will ever be any higher. And, certainly, I do not have the physical health, stamina, or energy to chase after a child. I do not have the mental well-being to be entirely focused on one either. At least, not right now.
And, occasionally, I wonder what life would be like, someday, if I were a grandmother. But I'll never get that chance. Sometimes that makes me very sad. I would like to see some lineage form around me, someone to carry on my name, my ideas even...but not my illness. I wouldn't wish that genetic demon on my worst enemy. So perhaps it's best that I remain childless, but sometimes, sometimes, I just wish things were different. (Especially when bombarded with images like the above from every TV commercial, show, and movie out there.)
She is a woman of few words, and of no temper tantrums. Very opposite of my mom. She is a woman who spent her entire 82 years taking care of other people, and now finds herself at a loss as to what to do with her time, having nobody to take care of anymore (though to some degree she still helps my mom). She is someone I have always enjoyed being near, not because she's overly emotionally open, but because she always seems happy to see you, and wants to do whatever she can to make you comfortable when you're in her home. And I want to do whatever I can to be there for her, across these miles. So when she was in town, it was great to go to Disneyworld with her, to take her to the movies, to play a game with her, and my mother, brother, and sister.
But, me? I'll never be a grandmother.
This fact hit me smack across my face the other day in a McDonald's. It was about 5:00 PM, and apparently many grandparents take their grand kids to Mickey-D's at that time of day, because they were there, tons of them, crawling across the tables, climbing at the walls, yelling, laughing, screaming, crying, crawling, throwing things, demanding things, eating, singing, playing, all those things little kids do. And I thought, "I will never have this in my life. There is no opportunity for this to ever be there. I will be an old woman with no children, and no grandchildren".
And most likely, I will. I am a feminist, and I am pro-choice, so I am not prone to thinking it is my destiny in life to have a child. But I would like to have the OPTION to have one, if i want to. And, I really don't have that option. That option was robbed from me by this illness I have. This schizoaffective crap. Who is going to want to have a child with me, for one thing? Who? Nobody I know. Nobody I will be likely to meet any time soon. I do not date. I have not had a boyfriend in 3 1/2 years. I am totally celibate. There is no child coming from this womb.
Who is going to be dumb enough to have a baby with all the drugs I take from so many Pharmaceutical companies that will lie to protect the dangerous side effects their drugs can cause, running rampant through my body? Who would advise me to put a fetus through that kind of atmosphere? No one.
I asked the doctor who is the director of the community mental health center I go to, when he did my recent Psychiatric Evaluation, about how much my medications would affect a child if I ever did get pregnant. He was unclear as to how much of an effect there would be. He said it would be possible to have a child. He said Klonopin is the one I'm on that most frequently causes birth defects. But what does he know for sure? I have been on many, many, many medications over the years, most of which he doesn't know about since I was only meeting with him for an hour and there was no time to discuss all those. I have probably got a damaged liver by now, and if I don't, I probably will soon enough. I have been on psychotropic drugs for 21 years. That is a hell of a long time to experiment with your body.
So I won't have the baby clothes shopping sprees, or the baby shower, or the first day of kindergarten, or the screaming infant, or the laughing toddler, or the day she learns how to walk, those things a mother has. I won't have the honor of guiding a child in the way he, or she, should go, and of reading them bedtime stories and making sure they are not afraid of the Bogey man. I won't have their college graduation, their wedding, their first apartment, their children. I won't have those grandchildren. Unlike my Nanny (grandmother), I won't have the trips to Disney world, and the visits, and the people to take care of all around me. I won't have the people to take care of me, either, in the end. I won't have anybody.
It's not all sunshine and lollipops with kids. I have even thought many times, I'm glad I don't have a child, because my life is hard enough without another person to take care of. I'm not entirely sure my nerves could handle the screaming and crying, or that my stomach could ever handle changing a dirty diaper again; it's been many years since I worked as a babysitter. I'm not sure I could ever afford a child with my income, and certainly, now, I could not. I don't know when my income will ever be any higher. And, certainly, I do not have the physical health, stamina, or energy to chase after a child. I do not have the mental well-being to be entirely focused on one either. At least, not right now.
I wouldn't want to have a child alone, and I couldn't financially do so anyway. I would want a partner, someone to help me raise this person. And I don't have any hopes of finding a partner again. My taste in men is often poor. I fell for a totally narcissistic drug addict who berated me for getting overweight the last time around, and I have shied away from men ever since. I am overweight, and certainly don't feel attractive. My chances of finding a guy who would be interested and who I would find interest in are slim to none. I have little interest at all in men anymore. I just don't care much about it. It doesn't bother me that I have no one in my life romantically. I just occasionally wonder what life might be like if I did.
And, occasionally, I wonder what life would be like, someday, if I were a grandmother. But I'll never get that chance. Sometimes that makes me very sad. I would like to see some lineage form around me, someone to carry on my name, my ideas even...but not my illness. I wouldn't wish that genetic demon on my worst enemy. So perhaps it's best that I remain childless, but sometimes, sometimes, I just wish things were different. (Especially when bombarded with images like the above from every TV commercial, show, and movie out there.)

17 comments:
I too am in the same boat about never being able to have children because of my medication and certainly because of my illness. I do have a partner but we already went down that road and I tried to go off my medication and ended up manic and psychotic that ruined a friendship and really upset my mother when I accused her off accessing my medical files. She is a nurse. My Nana has depression and so does my mum and so they have passed it to me, but I have bipolar instead. Both of them have borderline personality disorder and so do I. I also will have no line after me of children and grandchildren. Sometimes I get really down about it but I don't think I could cope with it anyway, even if I could have it. So I do get where you are coming from having had some similar thoughts myself. It's hard to make peace with it sometimes.
~Sarah~
My sister, 34 ,who has been living with schizophrenia for 10 years now wants so badly to have a normal life as a woman.
I pray the day our communities here in Kenya, Africa would understand that persons living with the illness are human and not demon infested.
Thank you for starting this blog.God bless you.
I am thinking of starting a support group of which i am planning for my sister to run in order to help patients and their families and the community in general understand how to manage the illness.
If you are out there and you feel you want to contribute in realizing this goal please get in touch with me.
James from Nairobi, Kenya
I get blood drawn and tested once a year to make sure my meds are not harming my body since I take an anti psychotic. Your doctor should be doing the same for you. As far as children go...many and I do me a lot of mentally ill women do fairly well stopping their meds for the nine months they are pregnant. Their hormones are regulated during that time so they are not as ill.
I do feel for you having to face such a life altering decision. But do not give up hope on men. My man fell in love with me when I was 240lbs and now I weigh even more. He loves me dearly and I think it is possible for any woman to find love with the right man. You are always in my thoughts girl. HUGS
Jen,
Even if you were to have children, there is no guarantee that you would be a grandmother. You unfortunately can't direct your kids to do that.
I have three boys and I took an anti-depressant while pregnant with the youngest. He has autism. I do not know if there was a link between the SSRI I took at a very low dosage to keep me from killing myself and the autism, but I wonder about it a lot.
Having kids with a mental illness is very, very hard and I would think impossible without someone to share the burden with. I could not do it without my husband.
My kids are not moving in the direction of ever giving me grandkids. My oldest is 19 and does not even date. So, between that and the youngest having autism, I may not ever have daughters-in-law or babies in my life again and that makes me super sad. I would like to know that there will be someone there when I am old and need them.
I really felt what you were saying in your post. I saw a commercial last night on television and said to my husband, "I just want to hold a baby." I don't want another one. I just miss holding mine when they were little.
I am sure that if you were ver interested in having a relationship, there would be someone out there for you. It's all in what you want out of life. You have to come to terms with what you are able to do. And if you really wanted to have children, there is adoption and fostering too. The need for foster parents is tragically great.
Don't think that it will never happen for you because you may find that there are other ways to have a family than to carry a child.
Chelle
Hi Jen,
Your honesty and openness about this topic is brave. I am sure some people living with a diagnosis have felt the same way at one time or another. I've once felt similar doubts, but I do not anymore.
You are an amazing woman, why wouldn't anyone want to share their life with you? One day you may share with us readers how you never would have thought you would get married, but are married one day. I wish you much happiness.
Best regards,
Ashley Smith
Sarah - I'm sorry about that. I understand what you are saying. I think if I were married, it would be different, and I would really want a child. But I could be wrong. I am not sure that I would ever be able to handle it either. A lot of times being around kids really gets on my nerves. Just shopping in a store listening to a kid scream. I think, "I could never handle that stress every day". But oe once in a while, I do have that thought of, " I wish I could have that option".
Kenyan - I think it's a great idea to start a mental health support group in any area, although I'm not sure I could be much help from where I live. I could give some tips on when I did it before, and what worked, if you're interested in that.
Pink, yeah I know there are women who do manage it, but I honestly don't know anybody with Schizophreonia who has successfully managed a pregnancy. For me going off meds, means getting psychotic again. I can't go off them, even for a few months. But the time clock on me being able to have a kid is running out. I think the choice is pretty much made, that I'm not doing that. I am not willing to go floridly pschotic again, because I'd likely end up dead based on past evidence. But thank you for what you said on guys and that's really great that your man loves you for who you are and doesn't care about weight. I wish more men were like that. I also wish more people understood mental illness. I think dating me would be difficult for a lot of people, because of the illness. Even though I manage my life, I don't have a "normal" life. But that is okay.
Chelle, I am sorry you might not get grandkids, but you never know, someday that might change. My mother has three kids near 30 or over 30, and none of us are currently married and none of us have ever had children. She really wants grandkids, and she might not get them. One of the only reasons I would like to have a child, when I think I would like to, is that my mom would love it. I'm sorry your son has to live with Autism. That must be very difficult.
I used to work for an agency that provides services for families with children who have disabilities, and we had a lot of clients who had Autism. I'm sorry you had to take medication and you think it might have had an effect on your son, but you can't blame yourself, of course, for that. Even if it did have an effect, that was ot your fault. You were just doing what you needed to survive, as you said.
Ashley,
Thank you for the kind words and your optimism, which is something I always liked about you. :)
Hi Susan,
Loved this post.
I’m enjoying reading your blog and wanted to let you know that I nominated you for the Versatile Blogger Award, if you’d like to accept it, please follow the directions in my post here: http://thoughtsofjess.wordpress.com/2011/05/15/the-versatile-blogger-award/
Take care,
Jess
There's always hope, but coming to the realization and moving towards being okay with it works too. For all you know, if it is the Lord's will you could have kids, even if it does mean adoption. My cousin has schizophrenia and does have two kids. They are young, but we don't know what the long term effects will be. The first one she had before her first episode, the second one a few years later. I have no clue what they did about the medicine, but as I said earlier, there is hope with the reality that not being a mother is has a higher outcome. Plus, if kids aren't the Lord's will, then you can be the aunt or cousin, or whatever who gets to spoils someone else's kids. :) Good luck with life! Remain strong. You can do it, even when there are hard days.
I connected right away with what you were saying. When I was younger I never saw children in my future. Even when my husband & I spoke about it, children = NO. I can't stand them & never even babysat. It put a stamp on the decision when I was diagnosed with bipolar & everything else...as well as having the not so stable blood line. I figured my child didn't have a chance if I left it up to biology...as well as my desire to even have any.
I felt that I would never be a good mother. With my past, my present & what meds I was on & had been on...plus the ECT's...I was not a candidate for mothering a fetus/child. Time passes...
We decide we want to have children. Long story! Anyway, my psychiatrist explains the dangers of going off meds vs. not. It may be more dangerous if I go off the meds due to my moods & episodes harming the baby in the 1st 3 trim. We've made the choice to go off my meds. If anyone understands the dangers/risks of it I do...suicide, episodes...she said she'd even have ECT on standby for me. I will need that extra help due to it being a highrisk pregnancy...I think, "I have trouble handling things now, what about when I have a child?"
I don't want you to put yourself in 'a box'...eliminating it completely, a baby, or even a partner. I never put myself here in this moment, almost going back to school & thinking of a baby. 2 or so years ago I was nearly dead. Change does come with time...for all! ~CC
The show's not over until it's over. Unexpected things and people show up in our lives everyday. I know that this post was a moment of honesty and I admire your brave sharing. But I did want to try to inject a little hope. Even though I'm not on meds (yet) I'm too afraid to have children now because I'm afraid I'll put them through the emotional abuse that my parents put me through. No one is set up to be a perfect mom. Hope you feel better soon.
Great Blog. Would you be interested in a link exchange. We have the sites http://www.schizophrenic.com/ and Psyweb.com You can contact me at aryeh@deepdivemedia.net
I'm still quite young (21) but have been thinking seriously about whether or not to have children since receiving my diagnosis of bipolar I, and I have decided that, if I find a partner (because it would be a bad idea to do it alone) I want to go for it. I've always wanted to have children, motherhood has been a big part of what I value for most of my life.
I also know that mental illness, particularly bipolar disorder, is heritable. Both of my parents and two of my three uncles have dealt with mental health issues, and my own struggles haven't been a walk in the park. But with medication my life has been significantly improved to the point where I can go to class full time and work part time - I am (almost) as functional as I was before I got sick the first time. I think my life is worth living, and I think that choosing to have a baby when I have bipolar is no different than choosing to have a baby if any other heritable disease runs in the family - it's a risk, but it's a calculated risk.
But finding a partner is daunting! The question for me is, when to disclose to a new friend or date? Particularly because I've been trying to start a NAMI chapter on campus I've been struggling with how open to be about my diagnosis. And I think I want to live my life pretty openly and without fear, but it's intimidating sometimes, even with my closest friends, to talk honestly about an illness that nobody can really understand except from the inside.
Don't give up. I was diagnosised in my last semester of nursing school and although I don't work I was eventually able to go back and finish. I did however meet my husband. He knew what he was getting into because I was hospitalized while we were dating. He has stood by me through everything.
I got this disorder fromk my dad, but I am not to concerned about giving it to my kids because my dad had 12 kids and I am the only one who got it and I am not as bad as he is.
Long story short, I have five kids. I found that I was always more stable when I was pregnant. They said it was the hormones. I did have a hard time post partum. I couldn't breast feed because of the added meds post partum. I talked to a genetic counselor and he said that each of my children has a about a 5% chance of getting this from me. They are such a joy and this is not a death sentence (usually), so I am willing to take the risk. I have been fairly stable for a few years now. My life is full.
Don't give up. Anything is still possible for you.
Janelle
Don't give up. I was diagnosised in my last semester of nursing school and although I don't work I was eventually able to go back and finish. I did however meet my husband. He knew what he was getting into because I was hospitalized while we were dating. He has stood by me through everything.
I got this disorder fromk my dad, but I am not to concerned about giving it to my kids because my dad had 12 kids and I am the only one who got it and I am not as bad as he is.
Long story short, I have five kids. I found that I was always more stable when I was pregnant. They said it was the hormones. I did have a hard time post partum. I couldn't breast feed because of the added meds post partum. I talked to a genetic counselor and he said that each of my children has a about a 5% chance of getting this from me. They are such a joy and this is not a death sentence (usually), so I am willing to take the risk. I have been fairly stable for a few years now. My life is full.
Don't give up. Anything is still possible for you.
Janelle
I have Bipolar and I have 2 kids. I was undiagnosed when I had the first - it was a helluva time and when I was diagnosed I thought that I wouldn't have had a baby if I had known. But 8 years after my first baby I had another, while I was on medication. My husband has seen me through 3 hospitalisations, through all my weight gain, through all my ups and downs. Having mental illness does not disqualify you from being loved. There's always the possibility of having a life with the partner of your choice. Don't give up hope.
I am 39 and know I will never have a baby. At age 20, when I was diagnosed I realized I would never marry because I was damaged. And my dorm mother had me kicked out of college after organizing a shunning campaign against me. So I began to think of ways to kill myself. Wonder why.
The thing keeping me alive is the belief that God has something for me to accomplish. As a Christian, I have no right to end my life because I am unhappy or some people are cruel.
It still is painful to go to weddings and baby showers. I opt out when I can. If I hear another preacher in a wedding mention how "It's not good for a man to be alone," I think I'll throw up. I didn't choose to be alone! People rejected me!
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